Saturday, October 10, 2009

Day +16 (Top ten ...)

1. The elevated counts regarding Hunter's liver are slowing decreasing. This is good news.

2. The doctors think Hunter might have Graft Versus Host Disease of the gut in addition to his liver. This can be managed through steroid therapy or other immunosuppressant drugs.

3. Hunter has not had a temperature since beginning prednisone therapy. He will have twice weekly labs to check for infections because steroids can mask a fever.

4. The doctors minimally lowered Hunter's Lasix drip to rest his kidneys, even though there is currently no issue with them. They have been working overtime the past few days and deserve a break.

5. Hunter is near engraftment. His ANC (based on the white blood cell count of his new immune system) was 700 today. The doctors consider engraftment to be two consecutive days above 500. This is encouraging, however this particular count fluctuates daily and could dip before going back up.

6. During rounds this morning Hunter's Attending Physician said, "We're not out of the woods yet but things seem to be moving in the right direction."

7. Hunter slept uninterrupted through the night and has been awake for a total of two hours today. He played games, read books and watched Toy Story.

8. We are happy to be back in the transplant unit. However, we lost our spacious suite and are now in a "closet" overlooking the psychiatric ward playground. We've certainly had an eyeful so far.

9. Thank you to Grandma Marcia for holding down the blog during a stressful time.

10. Thank you for all of your comments, texts, emails, Facebook messages, phone calls, voicemails, letters and care packages. We are extremely appreciative of the constant support.


  1. Bonjour à tous,

    Un dimanche de soleil et de mistral à Marseille, que nous aimerions bien partager avec Hunter. Nous lui envoyons du soleil, la mer rebroussée par le vent frais de Nord-Ouest et notre envie qu'il soit bientôt là, avec nous, pour voir ça...

    Courage à tous et mille bisous ensoleillés et ventés
    Sylvie et les garçons

  2. absolutely delighted to hear some good news; recognise that there is still a way to go but so positive to hear about the liver and the engratment. we are thinking of you all and sending lots of best of british hugs and kisses

    emma xxxx

  3. So glad to hear that Hunter is out of ICU. Sorry to hear that you lost your suite, but it sounds like the new view will be a great distraction. Thinking of you. Love, Shelley

  4. So glad to hear that Hunter is out of the ICU and is on his way to engraftment. Keep going in the right direction Hunter.