Friday, November 13, 2009

Day +50 (Half way home ...?)

The last few days have been rather quiet. Yesterday Hunter had his occupational therapy assessment. The therapist was pleased with his progress since transplant and did not require any additional sessions, which allows our schedule some flexibility during the week. Today's outpatient clinic visit was also pretty quiet, unless you count a temper tantrum or two by Hunter. It was the basic blood draw, IVIG infusion, physical exam that take place every Friday. Hunter's platelet count increased to 85,000, truly unbelievable! However, since Hunter did not meet his hydration requirement on Wednesday or Thursday, the team put him back on a four hour infusion of 250 milliliters. Luckily for all of us it's not the ten hour infusion! Hunter's antinausea medicine was discontinued after Tuesday's clinic visit, but restarted today due to this mild setback. Hunter begins twice weekly physical therapy appointments on Monday. We look forward to these "work out" sessions as he still fatigues easily. Another fifty days and we could potentially be back in L.A., also unbelievable!

P.S. Please, please, please help Hunter (us) send out positive vibes, prayers and well wishes to his (our) friend Ashley!


  1. I think of Ashley..I hope her transplant will go as well as Hunter's :) And I hope he'll be able to visit her as often as possible before to go back to Simi !!!

  2. Je pense à tous les enfants malades et je regarde les miens en espérant que jamais, ils ne passent par les épreuves qu'ont traversé Hunter et son amie Ashley...
    On vous embrasse et vous envoie des milliers de baisers tous doux...
    Sylvie et les garçons.

  3. So happy to see Hunter is doing better, been following his progress, such a brave little man!
    Sending you good vibes all the way from France,