Hunter was moved to a larger suite early this morning. We have no complaints about that.
He has one more dose of Busulfan scheduled for 8:00 this evening. Tomorrow night he begins his second chemotherapy drug, Cytoxan.
He continues to do well overall, but his appetite is slowly dissipating.
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Our son, Hunter, was diagnosed with a rare immuno-deficiency disease, Wiskott-Aldrich Syndrome, in August of 2008. He was almost 14 months old at the time of his diagnosis. This blog will follow Hunter's journey as he negotiates the ups and downs of his testing, potential procedures and future outlook.
Hunter
Hunter
Hunter
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2009
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September
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- Day +6
- Day +5 (Graphic/Everything worked out ...)
- Day +4 (Fresh Cut)
- Day +3 (Sleeping Beauty)
- Day +2
- Day +1 (Can you say rough night?)
- Another Day 0
- Day 0 (The moment ...)
- Day -2
- Hunter's current medication list ...
- Day -3 (Part 2)
- Day -3
- Day -4
- Day -5/Day -4 ("Welcome to chemo!")
- Day -5 (Diaper Rash)
- Day -6 (Part 2)
- Day -6
- Day -7
- Day -8
- Day -9 (Countdown to Day Zero/Transplant)
- Admitted ...
- All is well after a very long Friday ...
- Infused ...
- Forward movement ...
- The Bottom Line ...
- Hello! It's me, Hunter.
- Two isn't always better than one ...
- This is where we're at ...
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September
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