Wednesday, December 16, 2009

Day +83 (Christmas in Seattle ...)

Hunter's dental exam went well yesterday. The doctor found no signs of GVHD in Hunter's mouth. Similar to his eyes, it will be a matter of continued and diligent observation over the course of his growth and development. Unfortunately, our departure conference is not scheduled until Monday, December 28th. Sadly, we will spend Christmas in Seattle without Harper, difficult to digest. Hunter's Attending Physician agreed to begin Hunter's steroid taper tomorrow so we can deal with any potential issues prior to our conference. As we will have several details to take care of after the 28th, including Hunter's Central Line removal and a nurses' clinic, it remains to be seen if we will make it home for New Year's Eve. Even though next week is a short week due to the holiday, we will have an immunology meeting to take a closer look at Hunter's immune function results. Also, we will meet with members of the Long-Term Follow-Up Team, who will give us specific instructions on how to care for Hunter in the coming months. Ultimately, all of these things will make our life easier once we return to L.A.
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4 comments:

  1. UnknownDecember 17, 2009 at 8:58 AM

    Shoot! You must be so disappointed. You're so close to going home, but I'm sure it feels like not close enough. I hope the next couple of weeks go by as quickly as possible. I'm thinking about you and can't wait to see you and Hunter soon!

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  2. gaelleDecember 17, 2009 at 11:06 PM

    It's ok...Harper won't notice if you celebrate Xmas a few weeks after....Even Hunter won't mind. Don't be disapointed, everything's fine and you're almost home now, you'll pretend it's still the 25th:) It could be the longest 25th ever in the history. Actually they're going to celebrate twice, may be they'll get more toys this way!! Some on the 1st one ( now), some on the 2nd (later)...

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  3. SumathiDecember 18, 2009 at 4:25 PM

    That has to be so disappointing to hear that you will not be together this Christmas. It will be tough to go through the holidays and be away from Harper..thankfully Hunter seems to be staying on course and you will get to spend many, many Christmases together as a healthy family.

    Wishing you all a very Happy and Healthy New Year.

    Sumathi

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  4. UnknownDecember 19, 2009 at 11:39 AM

    I'm so sorry you won't be able to be home with Harper :-(
    I am VERY happy to hear that Hunter continues to improve! I send you all a great big hug from Noo Yawk and wish you a very Merry Christmas and a wonderful and healthy New Year for all!
    Richard and I are thinking of you and send our best wishes. Debs

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