Wednesday, December 16, 2009
Day +83 (Christmas in Seattle ...)
Hunter's dental exam went well yesterday. The doctor found no signs of GVHD in Hunter's mouth. Similar to his eyes, it will be a matter of continued and diligent observation over the course of his growth and development. Unfortunately, our departure conference is not scheduled until Monday, December 28th. Sadly, we will spend Christmas in Seattle without Harper, difficult to digest. Hunter's Attending Physician agreed to begin Hunter's steroid taper tomorrow so we can deal with any potential issues prior to our conference. As we will have several details to take care of after the 28th, including Hunter's Central Line removal and a nurses' clinic, it remains to be seen if we will make it home for New Year's Eve. Even though next week is a short week due to the holiday, we will have an immunology meeting to take a closer look at Hunter's immune function results. Also, we will meet with members of the Long-Term Follow-Up Team, who will give us specific instructions on how to care for Hunter in the coming months. Ultimately, all of these things will make our life easier once we return to L.A.
Posted by RT II at 9:27 AM